Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
Episodes
Friday Aug 21, 2020
A Disease Advocate Gets Personal About Diagnosis and Treatment Denials
Friday Aug 21, 2020
Friday Aug 21, 2020
In this episode, managing editor Ilana Bean talks with disease advocate Whitney Carter about her journey to multiple diagnosis and how it led her to getting involved patient awareness. Recorded at the NIH Rare Disease Week in February 2020.
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