Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
Episodes
Friday May 22, 2020
Friday May 22, 2020
Hello! We are back with a conversation recorded during rare disease week with Antonio Maltese, a 23-year-old managing Huntington's disease and ostenecrosis. We talk about disappointing medical care, hope for the future, and fears surrounding the diagnoses. Read more about Antonio at these links: https://patientworthy.com/2019/05/23/how-i-turned-huntingtons-into-my-lifes-passion-for-change/ https://patientworthy.com/2020/03/16/help-huntingtons-disease-patient-dvocate-in-need/. You can also find Huntington's support here https://en.hdyo.org/ and https://hdsa.org/.
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