Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
Episodes
Thursday Jun 11, 2020
Thursday Jun 11, 2020
We're still learning and we're not really the right spokespeople for this subject. However, we also know a podcast about rare disease would be incomplete if we didn't discuss the racism and inequalities Black people in the US face. We're posted a short episode with a brief overview of some of the ways our healthcare system doesn't serve Black people in the US. We encourage you to follow other resources and hope to one day expand further on these topic individually.
Resources:
https://blackhealthmatters.com/
Links:
https://www.aamc.org/news-insights/how-we-fail-black-patients-pain
https://www.hopkinsmedicine.org/henriettalacks/
https://blogs.scientificamerican.com/voices/silence-is-never-neutral-neither-is-science/
https://www.nytimes.com/2018/05/11/podcasts/the-daily/mortality-black-mothers-babies.html
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