Wait, How Do You Spell That? A Rare Disease Podcast

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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.

Making the “Invisible,” Visible With Journalist Karina Sturm

July 30, 2021

In this episode, we speak with journalist and filmmaker Karina Sturm about Ehlers-Danlos Syndrome and disability awareness and inclusion. To learn more about Karina, or to check out her documentary, "We Are Visible," visit her website here.

Wait, How Do You Spell That? A Rare Disease Podcast

Wait, How Do You Spell That? A Rare Disease Podcast

Making the “Invisible,” Visible With Journalist Karina Sturm

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Wait, How Do You Spell That? A Rare Disease Podcast

Wait, How Do You Spell That? A Rare Disease Podcast

Making the “Invisible,” Visible With Journalist Karina Sturm

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